Hall & Wrye Healing Journeys "Project 8P" Fundraiser & Film Screening

100 North Sierra Street,Reno NV 89501

27 September, 2022

Description

Join us for a special evening of support to bring awareness to “Project 8p” hosted in collaboration with Healing Journeys by Hall & Wrye Plastic Surgeons and Aesthetic Treatment Centers. 8p individuals are described at experiencing developmental delays, including the disordered acquisition of cognitive and social competence and delays in reaching developmental milestones. The evening will include a short documentary showcasing a local Reno family whose daughter, Athena was diagnosed with Inv/Del/Dup 8p, five years ago. The evening will consist of the opportunity to support the project through fundraising efforts and a light reception. WHEN: September 27th, 6 p.m. – 7:30 p.m. WHERE: Liberty Food & Wine Exchange Nearly 7,000 diseases and conditions affecting fewer than 200,000 Americans are considered rare in the United States. While each of these rare diseases individually may affect small numbers of people, rare diseases affect almost 30 million Americans, individuals, and families. Those affected by rare diseases often experience problems such as diagnosis delay, difficulty finding a medical expert, and lack of access to treatments and services. Chromosome 8p is a rare genetic condition with approximately 350 patients worldwide. A chromosome disorder typically impacts every cell a human body, and often the entire human system. Currently, science does not have the means to treat this condition. "Project 8p’s" research is vital to accelerate the discovery of treatments for chromosome 8p disorders through a translational research program and provide a unified community for chromosome 8p heroes for a meaningful life today while accelerating treatments for tomorrow. While the public is familiar with some rare diseases and sympathetic to those affected, many patients and families affected by less widely known rare diseases bear a large share of the burden of funding research and raising public awareness. Many rare diseases are serious and debilitating, significantly impacting the lives of those affected. This event is an effort for the local medical community to support the search for treatments and bring awareness to the 8P Project and rare diseases that affect thousands of patients and caregivers, medical professionals, researchers, medical companies, nonprofit organizations, and others.