Rare Funds Launch

600 Bellevue Way Northeast,Bellevue WA 98004

09 September, 2022

Description

The Rare Funds Launch is a rare opportunity to be on the ground floor of a community that aims to build community and commercialize rare diseases. This will be an evening of networking and fundraising with rare disease innovators, patients, parents, investors, advocates, clinicians, and physicians as we come together to foster community and support for advances within rare disease treatment. _____________________________ From microgrants to commercial productsFounded in 2008, the Rare Disease Foundation has been working tirelessly to provide impactful seed-funding for rare disease research and advocate for rare disease patients and families. What started as a humanitarian effort to support patients, parents, and loved ones impacted by rare diseases has since grown into a global network of 20,000+ community members inclusive of physicians, clinicians, patients, parents, and partners. Each passionate about producing an earlier diagnosis and treatment for rare disease patients.  Over the past 14 years, the Rare Disease Foundation has: Funded $2.1 million in micrograntsFinanced  464 micrograntsAwarded 565 micrograntsSupported more than 50 academic institutions on 3 continentsGenerated 14 cures or major therapies and 22 potential and helpful therapiesProduced 1,400 total presentations and 550+ research publicationsDiscovered 16 new genesManaged and own 10+ IP assetsBuilt 8 global disease registries and launched 18 helpful toolsAccelerated the funding cycles of 25% of micro grants awarded to researchersResearchers have raised a total of $8.6 million in bridge fundingFor almost two decades, the Rare Disease Foundation has consistently proven we can set a new standard in rare disease research by green-lighting microgrant research projects while creating an environment inclusive of patients, parents, clinicians, physicians, and corporations. But, why stop there? _____________________________ Introducing Rare FundsThe Rare Disease Foundation is proud to launch Rare Funds. This venture fund and accelerator will focus on advancing previous and current microgrant projects centered on four areas of improvement in the rare disease space: Rare disease prevention genomics & precision medicineQuality of life for rare disease patients (devices)Rare disease cures and therapeuticsDigital technologies such as blockchain, A.I, M.L., NFTs, web3.0, and more.Since the Rare Disease Foundation's Microgrant Program successfully identified that $5,000 is enough to prevent, incubate, or cure a rare disease, the plan is to use additional capital to scale our disease registries, research, innovation, and support for rare disease commercialization with the goals of improving our community and impacting patient outcomes globally. We aim to raise $2M and are actively looking for advisors, mentors, innovators, partners, and team members. Funds will help us continue to support our microgrant program. ________________________________________________ AgendaThe event will be taking place on September 9, 2022 from 5:30 - 11:30pm PST 6:00 pm PST - 7:00 pm PST: Patient Consortium Cocktails7:30 pm PST - 8:30pm PST: Dinner & Keynote Speaker9:30 pm PST - 11:00 pm PST: Networking_____________________________ About Rare Funds: Rare Funds is a global accelerator headquartered in the U.S. focused on investing in and commercializing rare disease innovations and actively building a global network of rare disease patients. About Rare Disease Foundation: The Rare Disease Foundation (RDF) was founded in 2008. RDF was launched by rare disease patients, caregivers, researchers, and practitioners who shared the same sense of urgency and values about access to resources and research for rare disease patients and their families. Today, the foundation serves a global community with research funding, resources, and community programs. If you're interested in sponsoring the event, please reach out to [email protected].