Rare Funds Launch

600 Bellevue Way Northeast,Bellevue WA 98004

09 September, 2022

Description

The Rare Funds Launch is a rare opportunity to be on the ground floor of a community that aims to build community and commercialize rare diseases. Join us with fellow eye health innovators, community leaders, government officials, entrepreneurs, investors, teachers, and healthcare professionals to discuss ways to make access to eye health possible for all. ________________________________________________ From microgrants to commercial productsFounded in 2008, the Rare Disease Foundation has a proven track record for providing impactful seed-funding for rare disease research, while also supporting rare disease patients and families. What started as a community to support patients, parents, and loved ones impacted by rare diseases has grown into a network of 20000+ community members (inclusive of physicians, clinicians, patients, parents, and partners) passionate about getting an earlier diagnosis and treatment for rare disease patients. Over the past 14 years, we have: Funded $2.1 million in micrograntsFinanced over 550 microgrants Supported more than 50 academic institutions on 3 continentsGenerated 7 cures or major therapies and 22 potential and helpful therapiesProduced 1400 total presentations and 550+ research publicationsDiscovered 16 new genesManage and own 10+ IP assets Built 8 global disease registries and launched 18 helpful toolsAccelerated the funding cycles of 25% of micro grants awarded to researchers Researches have raised a cumulative of $10.6 million in follow-on bridge fundingFor almost two decades, the Rare Disease Foundation has consistently proven we can set a new standard in rare disease research by green-lighting microgrant research projects while creating an environment inclusive of patients, parents, clinicians, physicians, and corporations. But, why stop there? ________________________________________________ Introducing Rare FundsThe Rare Disease Foundation is proud to partner in the launch of Rare Funds, a venture fund focused on accelerating previous and current microgrant projects, curated with a focus on four areas of improvement in the rare disease space: Rare disease prevention genomics & precision medicineQuality of life for rare disease patients (devices)Rare disease cures and therapeutics Digital technologies such as blockchain, A.I, M.L., NFTs, web3.0, and more.The goal is to raise $5M through a Special Purpose Vehicle (SPV). After successfully identifying that $3,500 is enough to prevent or cure a rare disease through microgrants, now we can use additional capital to scale our databases, research, innovation, and support for rare disease commercialization to improve our community and impact patient outcomes globally. ________________________________________________ AgendaThe event will be taking place on September 9, 2022 from 5:30 - 11:30pm PST 6:00 pm PST - 7:00 pm PST: Patient Consortium Cocktails7:30 pm PST - 8:30pm PST: Dinner & Keynote Speaker9:30 pm PST - 11:00 pm PST: Casino & Networking________________________________________________ About Rare Disease Foundation: The Rare Disease Foundation (RDF) was founded in 2008. RDF was launched by rare disease patients, caregivers, researchers, and practitioners who shared the same sense of urgency and values about access to resources and research for rare disease patients and their families. Today, the foundation serves a global community with research funding, resources and community programs. About Rare Funds: Rare Funds is a global accelerator headquartered in the U.S. focused on investing in and commercializing rare disease innovations and actively building a global network of rare disease patients