Sickle Cell Educational Conference

131 West Broad Street,Rochester NY 14614

18 June, 2022

Description

9:00am - 1:00pm Educational Conference 131 W Broad Street (Rochester City School District A/B Conf Rm) 6:00 - 11:00pm Live Jazz Jubilee featuring Band "As One" Topic: Educational Conference Join Zoom Meeting https://us02web.zoom.us/j/89240773028?pwd=YllLSFAvdmlVcTY5aHJ5SlV4bDl6QT09 Meeting ID: 892 4077 3028 Passcode: 603984 One tap mobile +16465588656,,89240773028#,,,,*603984# US (New York) +13017158592,,89240773028#,,,,*603984# US (Washington DC) Dial by your location +1 646 558 8656 US (New York) +1 301 715 8592 US (Washington DC) +1 312 626 6799 US (Chicago) +1 346 248 7799 US (Houston) +1 669 900 9128 US (San Jose) +1 253 215 8782 US (Tacoma) Meeting ID: 892 4077 3028 Passcode: 603984 Find your local number: https://us02web.zoom.us/u/kj0qwFPxh Panelist include: Dr. Suzie Noronha – University of Rochester – Sickle Cell 101 Dr. Francis Coyne – University of Rochester – Pediatric to Adult Transition Dr. Mark Goodwin - SCTPN - Sickle Cell Thelessemia Patient Network – Advocacy LaTasha H. Lee, PhD, MPH - Vertex Pharmaceutical - New and Innovating SCD Clinical Trials Dr. Brian Berman - Emmaus - Endari® (L-glutamine oral powder) for Sickle Cell Disease Dr. Renee Gardner - GBT - Patient Programing Sickle Cell Gregory Brannon - Patient Video SCD/SCT Kim Jones – SCTPN - Emergency Room Patient Experience Ginger Davis (Director) - SCTPN Sickle Cell Thalassemia Patient Network - Emergency Room Advocacy Demond Meeks – Assemblyman – Legislative Agenda