Carolina Drive to Cure Sanfilippo Golf Tournament

7101 Highland Creek Parkway,Charlotte NC 28269

06 May, 2022

Description

6th Annual Carolina Drive to Cure Sanfilippo Golf Tournament Join us on Friday May 6th for the 6th Annual Carolina Drive to Cure Sanfilippo Golf Tournament at Highland Creek Golf Club in Charlotte, NC. Abby Grace and Aislinn's Wish Foundations partner together to raise money for medical research to find a cure for the rare genetic disorder Sanfilippo Syndrome. Sanfilippo, also known as Childhood Alzheimer's, affects 1 in 70,000 children with no available treatments or a cure. Children with Sanfilippo start their lives as normal kids but within a few years, it all begins to be taken away. Children are born with a genetic defect passed on from their parents in which the child lacks an enzyme that is responsible for cleaning out cellular waste from the Central Nervous System. Without the ability to get rid of the waste, materials build up over time and the children progressively lose their abilities. Children with this disorder usually pass away in their early teens, yet it is preceded by many years of severe disability. Visit www.carolinadrivetocuresanfilippo.org for sponsorship opportunities.