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NORTH KINGSTOWN, RI — In 2019, North Kingstown resident Tim Larson, 36, ran his first Boston Marathon, and he ran for Boston's Children's Hospital's Miles For Miracles team.
Larson ran for Drystan, a boy who was battling cancer. Larson said Drystan is healthy and in high school now. And that experience inspired him to run the Boston Marathon again in April, this time for a cause that hits close to home.
"It doesn't get any closer to home than my next-door neighbors, and their amazing daughter Keira,"
Keira, 13, was one of the first children diagnosed with ADNP Syndrome, a rare genetic disease, which causes developmental delays and motor skill issues. The condition causes a gene mutation, which has been linked to autism.
"She is kind, cheerful, funny, and always loves coming over into our driveway for quick hugs, snuggles and giving treats to our dog Kobe," Larson said.
To support Keira, Larson will run the 2022 Boston Marathon to raise money for the ADNP Kids Research Foundation.
Those that wish to donate to Larson's fundraiser can do so at GoFundMe.
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