Pig Roast for a Cure

696 Lafayette Road,Medina OH 44256

21 May, 2022

Description

Pig Roast with silent auction and basket raffle to raise funds for The Cure JM Foundation The Pig Roast will be provided by Cathy Keller at the Eagles in Medina. There will be opportunities to bid on silent auction items and purchase tickets for gift basket raffles and of course a 50/50. A cash bar will be available. There will also be a bounce house for the kids so the event will be fun for the whole family! If you own a business and would like to make a donation for the auction or a basket while advertising your business, please contact us at [email protected]. We are looking for any size donation that will help raise money for The Cure JM Foundation! Gather a group of friends and join us to raise money for a great cause and celebrate our son Spencer ! Our son, Spencer, was diagnosed in 2017 with Juvenile Dermatomyositis (JDM). This is an extremely rare autoimmune disease that only affects 2-3 kids out of a million. His immune system attacks his muscles which causes muscle inflammation and pain along with weakness. Prior to his diagnosis he went from being an active 4 year old to struggling to get in and out of bed, going up stairs or even getting dressed. He would cry in pain almost every night. After diagnosis, he was able to get relief from Prednisone and Methotrexate. By fall of 2019 we were able to wean him off Prednisone with success. Unfortunately, he came down with a virus in February 2020 and in March of that year his disease flared. His muscles where hurting him and daily tasks became very difficult. We also began noticing Calcinosis developing in 4 different areas of the body (side effect of the disease affecting his range of motion, etc.)This time around we had more trouble getting things under control. We were able to meet with the top specialists for JM to get some advice. In November of 2020, he began a new treatment including daily Prednisone and Colchicine, weekly shots of Methotrexate and Orencia(immunosuppressants) , and Intravenous Immunoglobulin (IVIG). Spencer's IVIG treatments require him to spend a full day in Akron Children's Hospital each month. Cure JM is an amazing organization that is dedicated to funding research and pursuing a cure. JDM is an “orphan” disease which means that due to its rarity it DOES NOT RECEIVE GOVERNMENT FUNDING like other diseases. They rely solely on fundraisers like this one. We are humbly asking for your help in raising money to support our boy along with all the other kids who are special enough to be in the 2 or 3 out of a million. Romans 5:3-4 NLT "We can rejoice, too, when we run into problems and trials, for we know that they help us develop endurance. And endurance develops strength of character, and character strengthens our confident hope of salvation."