2nd Annual Feeding Matters Fundraiser with Tyler Reid Music

2701 Carroll Avenue,Cleveland OH 44113

02 April, 2022

Description

We had so much fun last year at Great Lakes Brewery with Tyler Reid Music that we decided to make a repeat in 2022 to help kids with PFD! Ticket prices include delish heavy hors d'oeuvres and 2 drink tickets per person, live music by www.tylerreidmusic.com and access to a wonderful array of stuff to bid on! Come ready to party! Parking is limited around GLBC -- meters or small lots will be available at/around the GLBC campus. Can't make the event but still want to help? Donate here: https://www.feedingmatters.org/get-involved/give Imagine your child is unable to eat or drink what they need for their body to grow. They cry, choke, vomit or run from the table when you show food or drink. Every few hours you try again, but your child is still unable to eat. Something is wrong. This is Pediatric Feeding Disorder.Did you know that Pediatric Feeding Disorder affects more than 1 in every 37 children in the US before the age of 5? It's more prevalent than autism and cerebral palsy.Did you know that a diagnostic code for Pediatric Feeding Disorder was just approved in 2021? This matters because, for the first time ever, PFD can be officially diagnosed, validating families' concerns and healthcare professionals' efforts.Did you know that Emily is on the board of Feeding Matters - the first organization in the world uniting families, healthcare professionals, and the broader community to improve the system of care for children with pediatric feeding disorder through advocacy, education, support, and research.Morgan's feeding issues started almost immediately -- she was never a great eater and had a terrible case of Reflux that was initially managed and then returned with a vengeance. We tried to get her treatment at basically every hospital in NE OH -- The Cleveland Clinic, University Hospital and Akron Children's -- but no one seemed to know what was happening. We tried different treatments, therapies, invasive allergy testing... everything. Emily and Mark got up every 90 minutes throughout the night to "dream feed" Morgan through a bottle because she wouldn't eat when she was awake. We tried every pediatric dietician trick imaginable. And she still lost weight. Getting the NG tube that day felt like total defeat. However, it bought us some time to get her growth and development back on track while trying to find a diagnosis and a cure for her challenges. Emily got to work immediately on trying to find a "pediatric intensive feeding program" that might be able to retrain Morgan to eat and to develop a better relationship and confidence with food. Through many sleepless nights, tears and reliance on our wonderful network, we were led to Nationwide Children's Hospital and never looked back. Please consider supporting the most meaningful, wonderful team of people by donating to our cause today. All funds raised for Feeding Matters will be allocated improve the lives of children with pediatric feeding disorder.