Gaming 2 Cure JM

20 Waltham Street,Lexington MA 02421

30 January, 2022

Description

Join the Ryan Family at Gaming2CureJM. The event benefits The Cure JM Foundation and children battling the rare disease Juvenile Myositis. Join the Ryan Family at Gaming2CureJM on Sunday, January 30th from Noon to 4:00 p.m. at Pixel Palace in Lexington, MA for unlimited gaming & family fun.  All event proceeds benefit The Cure JM Foundation, the leading non-profit working around the clock to find better treatments and a cure for Juvenile Myositis.    All tickets include: Gaming, pizza, and chances to win BIG Prizes! We’re a local family with a story to tell. March 26th, 2018 we received news that no family wants to hear. Our then, four year old son Liam was diagnosed with a very rare autoimmune disease called Juvenile Myositis (JM). Only 1 in 500,000 kids receive this tough diagnosis. Currently there are no FDA-approved treatments and no cure, but with your support we are determined to change that!   Learn more at www.CureJM4Liam.com and follow Liam’s Journey on our social media accounts by liking: Facebook: Liam Hugo's JDM Journey, Instagram: CureJM4Liam Thank you all! Together we can Game 2 Cure JM! If you’re unable to come to the event, please consider making a donation by clicking Tickets.  HOW YOU CAN HELP TODAY  1. Buy a ticket for your family, donate a ticket to a family or donate what you can (donations are tax deductible, consult your tax advisor)  Donations can be made directly at www.curejm.org, please make them in honor of Liam Ryan  2. Share on all social media with hashtags #CureJM4Liam & #Gaming2CureJM  3. Email this Eventbrite link and these steps to any contacts you think would love to come to our event or to companies interested in local community event sponsorship  4. Stay Connected with us on Facebook by liking: Liam Hugo's JDM Journey, Instagram: CureJM4Liam Meet the Ryan Family Luke and Liz Ryan are a local family living in Lexington with three amazing children, Liam, Olivia & baby Levi. Liz works for TD Ameritrade and Luke for Audacy. They love family dance parties, ice cream sundaes, swimming and cookouts.  What is Juvenile Dermatomyositis (JDM)? JDM is a part of a group of rare and life-threatening autoimmune diseases, in which the body’s immune system attacks its own cells and tissues. Weak muscles and skin rash are the primary symptoms of JDM. JDM is a rare disease and its exact incidence is unknown. Approximately 2 to 4 children in a million in the United States are diagnosed each year. Many people ask us… What is the prognosis? Although there is no cure yet, with advances in early diagnosis and aggressive treatment, outcomes have continued to improve. Some children experience a mild form of the disease and may go into remission. Others follow a more severe and potentially debilitating course that can be life-long. Some JM patients will have a loss of range of motion. Some will battle an array of serious complications, resulting in the inability to walk, ongoing pain, disfigurement and even death. Whether the course of the disease is mild or severe, JM is life-changing for these special children and their families. For more information on the event or sponsorship opportunities please contact Liz and Luke Ryan at: [email protected] Donations can be made in "honor of Liam Ryan" at www.curejm.org   Cure JM Foundation® is a 501(c)(3) nonprofit organization focused on finding a cure for Juvenile Dermatomyositis (JDM) and Juvenile Polymyositis (JPM), the rare and life-threatening autoimmune diseases collectively known as Juvenile Myositis (JM). Our mission is to find a cure for Juvenile Myositis and improve the lives of families affected by JM.