In need of alittle help

Denver CO

Description

On November 17th, boyfriend and I welcomed a beautiful baby girl via C-section. Shortly after birth, her nurses and pediatrician noticed that she was in respiratory distress and struggling to eat. She was admitted to the NICU and placed on oxygen and a feeding tube. The doctors have since informed us that Nadya has all of the markers for a very rare genetic disorder called Cri Du Chat. This disorder affects 1 in 50,000 babies, and is caused by a "deletion" or a piece of the 5th chromosome missing, causing physical malformations and mental disabilities. At this time, just how much she will be affected is unknown until she receives further testing. All we know for certain is that she has an obstruction or deformity in her throat that is causing respiratory distress, choking, and difficulty feeding, and that she has a separation in her abdominal muscles. She is currently facing a lifelong road of surgeries, speech therapy, physical therapy, and doctor/hospital visits. I'm currently recovering from surgery and not medically cleared to drive and am very limited in motion, so Johnny is taking some time off from work in order to help out and be there for our baby girl. It's unclear how long Nadya will be in the NICU for, and she may be transferred to the Children's Hospital for testing and an extended stay there. In October, my boyfriend and I were diagnosed with Covid, and my boyfriend was forced to use all of his PTO in order to quarantine. Because of that, any time he takes off is going to really take a financial toll. I have a very difficult time asking for help, but we really need it. Anything would be beyond appreciated. Even just a share. Thank you in advance. https://gofund.me/360b7c7a