First Annual #seelikeMav Golf Tournament

2217 Eagle Harbor Parkway,Fleming Island FL 32003

19 February, 2022

Description

For us, this is more than just a golf tournament. During what was supposed to be a routine appointment with his pediatrician, Maverick flunked the eye chart which resulted in a series of appointments leading us to his diagnosis within the week. In an instant, our healthy child, who hardly ever ran a fever, was given the label of “disabled” and “visually impaired”. We were told that Maverick may never drive a car, or do many other things that adolescents and teenagers look forward to, and that he could become legally blind by the time he was an adult. As parents, we felt helpless as there was absolutely nothing we could do to change this outcome. There is currently no treatment, no procedure, no medicine and no quick fix like glasses, available for those with inherited retinal diseases like the one Maverick has. After researching different ways we could make his situation better, we were connected with the Foundation Fighting Blindness, an organization whose mission is to find treatments, preventions, and cures for blinding diseases like X-linked juvenile retinoschisis. Not only is the Foundation driving sight-saving research, but more importantly, they have given our family and families like ours, hope. Hope that one day we will not have to tell our son he cannot drive like the rest of his friends or that he cannot do that job that requires 20-20 vision. It gives us hope that there is a cure in the near future. Since he was able to walk, Maverick has been playing golf and has recently become involved in the PGA Junior League at Eagle Harbor Golf Club. We love this sport for him for many reasons, one of them being that with the help of a great caddy, it can be a life-long sport, no matter what happens with his vision. It also teaches him independence, decision making and how to pick himself up after a failure. Planning this tournament to support the Foundation Fighting Blindness has been a natural fit for our family to help move the mission of the Foundation forward. I am asking for your support through participating in the tournament, becoming a sponsor, or making a charitable contribution. We would love to have you join us and drive groundbreaking research, all while creating a tournament that participants can look forward to for many years to come. Tournament Details We are looking forward to having you join us on February 19,2022 for the First Annual #seelikeMav Golf Tournament benefitting Foundation Fighting Blindness! Eagle Harbor Golf Club, February 19, 2022 Lunch and Registration 11:30am Shotgun start 1pm Dinner immediately following the tournament Team Registration $500 Includes: green fees, cart, range balls, box lunch, dinner, tee gift Team Scramble, “Captains Choice” Contests and Events: Closest to the pin Longest Drive Silent Auction Have Maverick hit your tee shot from the Junior tees for $20! Mulligans $5 each Contact Us! Please reach out to us if you have any questions or if we can help you in any way. [email protected] Facebook: SeelikeMav Golf Tournament