Rett Syndrome Awareness Walk/Run (Anthem,AZ)

3655 West Anthem Way,New River AZ 85086

16 October, 2021

Description

October is Rett Syndrome Awareness Month! Come join us October 16, 2021, for a 1.5 mile walk/run as we come together to raise awareness! Event Details: Thousands of children and adults are trapped in their own bodies due to Rett syndrome. With a limited ability to play, participate in normal activities, or use their own voice, they need YOU to spread the word about Rett syndrome this month. As a rare disease, Rett syndrome affects 1 in 10,000 girls and even fewer boys. Countless people across the country still haven’t heard of Rett syndrome, which is why October is crucial for awareness, advocacy, and education. We will be meeting at Sweat Gym (3655 W. Anthem Way, Anthem, AZ, 85086). Sweat has graciously allowed us to host this event at their location. Please arrive no later than 7:45am as the group will leave promptly at 8am. The walk/run (whichever you prefer) will be lead by avid marathon runner Dawnylle Kohl; alongside her will be 4 year old Rett warrior Olivia Mae Carlisle in her wheelchair. Olivia battles and fights Rett syndrome every day. She is looking forward to meeting you all!! Please note this is not a race. Show your support by wearing purple for all children suffering from Rett syndrome. Feel free to make signs that raise awareness to hold during our walk. Please take time to learn more about Rett syndrome by visiting: https://www.rettsyndrome.org Event Schedule: Cost: This is a FREE event to raise awareness. However, any donation from $1to whatever your heart dictates (cash or zelle) on day of is appreciated and all proceeds will go to the Rett Syndrome Nonprofit Organization to help find a cure! Check in at Sweat Gym: 7:40am-7:55am. Restrooms and water inside gym for your convenience. Depart for walk/run: promptly at 8:00am. A 1.5 mile route from Sweat gym to the Anthem Park has been calculated, and will be lead by avid marathon runner Dawnylle Kohl and four year old Rett warrior Olivia Carlisle. Feel free to run or walk (but note this is not a race). Return from walk: 8:30am-8:45am Rett informational ceremony & refreshments: 8:45am-9:45am. Following our walk please join us outside in the Sweat gym patio where we will take a moment of silence as we remember and stand with our AZ Rett warrior families who have lost a loved one due to Rett. We will also have a short ceremony where we will honor any Rett warriors and their families that are present. *This will be an open house format with resources and information form our sponsored community vendors. If you can’t make the walk/run please feel free to join us for this part of the event. * We will be reaching out to Rett warriors and their families that reside in Arizona to join and partake in our event. This is a time for you to personally meet them, for our community to honor them, and to come together to raise awareness! *this event will be hosted outside to encourage social distancing*