Massachusetts General/Boston Children’s NF Symposium

Public Alley 419, Boston MA

Description

The Massachusetts General Hospital Neurofibromatosis Program, in collaboration with Boston Children's Hospital, invites you to the 2021 Patient and Family Virtual Symposium on June 19th. Learn about the latest research and clinical trials in neurofibromatosis and schwannomatosis, connect with other families, and ask questions! Registration is free. Schedule of Events 9:00-9:05 Welcome 9:05-9:20 Patient Engagement in Research 9:20-9:35 Long Term Study of Whole Body MRI in NF1, NF2, and SWN 9:35-9:50 Mind-Body Health in NF 9:50-10:10 Genetic Testing for NF 10:10-10:30 New Diagnostic Criteria for NF and SWN 10:30-10:45 Break 10:45-11:00 Advocacy and Patient Organizations 11:00-12:00 NF1, NF2, and Schwannomatosis Breakout Sessions: 11:00-11:30 NF1: From Bench to Bedside – Novel Treatments for Cutaneous Neurofibromas NF2: From Bench to Bedside – The Story of the INTUITT Trial Schwannomatosis: From Bench to Bedside – The Story of the Tanezumab Trial 11:30-12:00 Ask the Experts - NF1 Ask the Experts - NF2 Ask the Experts - Schwannomatosis Contact information: MGH Neurofibromatosis Clinic: 617-724-877 Boston Children's Hospital NF Clinic: 617-355-6000 This event is made possible with sponsorship from the Children's Tumor Foundation and NF Northeast. Link to register: https://www.eventbrite.com/.../2021-neurofibromatosis...