21 for 21 Annual Motorcycle Bike Run 2021

511 Bradford Avenue,Kemah TX 77565

26 June, 2021

Description

Join us rain or shine! Ride, Eat, Drink, Meet Eileen, & Live Music by Sol Flair! Sponsored by Sinners MC & Venue by Voodoo Hut! We are grateful to The Sinners Motorcycle Club of Pasadena for sponsoring and volunteering to help support our organization to further SYNGAP1research, specifically around Autism, Epilepsy and Related Neurological Disorders linked to the SYNGAP1 gene. "Special Guest" appearance by Eileen Grubba and played the role of "Roxanna" in the Sons Of Anarchy. Eileen Grubba's memorable, edgy roles in shows like Watchmen (2019), New Amsterdam (2018), Sons of Anarchy (2008), NBC's Game of Silence (2016), and HBO's Hung (2009). . Her challenges are much like the stories only seen on the silver screen. She is an advocate for children with disabilities, families with genetic cancers, and fights for the inclusion of performers with disabilities in film and television. LIVE MUSIC BY SOL FLAIR VENUE PROVIDED BY VOODOO HUT About Bridge the Gap - SYNGAP Education and Research FoundationBridge the Gap – SYNGAP Education and Research Foundation (501(c) 3) is a non-profit organization whose mission is to serve, educate and fund research for families coping with the effects of SYNGAP1 mutations. The leading organization advocating and raising funds for research and treatments for SYNGAP1. Our international outreach for SYNGAP1 children gathers critical information, which is needed to drive research towards more immediate therapeutic solutions. Bridge the Gap-SYNGAP mission is to improve the quality of life for people affected by SYNGAP1, provide family support, accelerating research and raising awareness so that every family and every child with SYNGAP1 can provide information that can guide us to a cure.