"Rare Tasting" celebrating Rare Disease Day

2B Oak Street,Medway MA 02053

25 February, 2023

Description

We enthusiastically invite you to join us for a "Rare Tasting" event to celebrate Rare Disease Day at the Thayer Homestead in Medway, MA on the evening of Saturday, February 25th from 7:00 PM - 10:00 PM. Our hope is to raise awareness of just how common rare disease really is - 1 in 17 people worldwide! You or someone you know is likely affected by a rare disease. This event allows us a wonderful chance to continue building this already robust community right here in Medway. All residents are welcomed to this fun-filled evening with lots of networking opportunities and eclectic recipes by Aliquots Catering. We look forward to connecting with Medway families, friends, and the local scientific rare disease community! Advanced registration is required. In lieu of an entrance fee, a donation is requested to support event costs and benefit the National Organization for Rare Disorders, Inc. (NORD). To account for catering, please register guests individually. Space is limited so register today! Please RSVP by Friday, February 17, 2023. For questions or additional donations, please reach out to: Juliane Nelson at [email protected] Girgenrath at [email protected] Rare Disease Day® is an international patient-driven awareness event held annually on the last day of February to raise awareness about the impact of rare diseases on patients’ lives and to emphasize the need for research.