Our Bodies, Our Data, Our Health is the third of a series of sessions on equity and representation in biorepository science. Our goal for this session is to inform guidance for researchers to meaningfully engage communities in the collection, storage, and use of biorepository data. We will explore the use, governance, and stewardship of this data and methods for ensuring community voice is centered in this research. The overall goal of the series is to bring community perspectives to Yale science and leadership, as Yale School of Medicine scales efforts to build and expand biorepositories. Ultimately, we aim to create a guidance document on community-engaged biorepository science.
Discussion
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