Everybody Fights For Henry

15 Channel Center Street,Boston MA 02210

11 December, 2022

Description

Henry is a little guy near and dear to our hearts here at EBF. We've known his parents for a long time, and some of us here are responsible for them getting together in the first place! Henry has AHC, a one in a million, severe, life threatening, neurological disease. When Henry was diagnosed, his parents were told there are no treatments for AHC so they made it their mission to find one. Henry's family started a non-profit called For Henry last year to fund develop a gene therapy for Henry called an ASO. The cost of developing this treatment for Henry is $3M. This treatment could be developed for Henry in a year and we are in a race against time to save him before he suffers irreversible brain damage as a result of his disease. Please join us in fighting For Henry and others with AHC and to help him get one step closer to a life free of debilitating daily seizures. We look forward to seeing you at our class on Sunday December 11th at 11:30 at EverbodyFights Seaport taught by Tony Haddad and Conner Gilliland! Join us for an afterwards at Capo for pizza and a raffle featuring items from: 120 West Salon, Covet Boston, Bodhi Boutique, and Capo!